It’s hard to be an advocate for a senior for years on end. I advocated for my own mom (with vascular dementia) for over 10 years, until I recently lost her. Advocacy is not an easy job and it can entail sleepless nights of concern.
It’s vital to select a Power of Attorney (POA) who currently knows you well enough. If you can no longer speak on your own behalf, your POA needs to know if you are over medicated or sedated just by looking at you. They need to know your baseline so they can help you and reverse the issue or accelerate an outcome in a timely fashion.
The POA’s main purpose is to comply with your wishes that were indicated before you became incapacitated. They should always protect your best interests both mentally and physically.
Over medication is a growing problem for seniors. I have heard many stories of hospitals overmedicating seniors. My own mother-in-law was over sedated in the emergency room. She has Alzheimer’s. They had no room in the psych ward and she was drug restrained for three days and two nights in the emergency room. Sigh…
It has taken us four months to get my mother-in-law off Haldol. Psychotropic drugs and dementia do not mix well. Her POA thought the doctors understood what they were doing tapering off the medication. Unfortunately, my mother-in-law’s doctor admitted to knowing nothing about psychotropic drugs and was relying on others to advise her. Gulp… What a mess! We are talking about seniors’ lives…
Neither the doctor nor the POA knew what to do about my mother-in-law’s medications or where to begin. It literally required a family member taking my mother-in-law to her doctor and demanding, in person, for the Haldol to terminate immediately. The doctor could see for herself the sedation instead of relying on the input from home health professionals. The weird part was the doctor agreed to terminate the Haldol in three days. We wondered why wait three days? It turned out she wanted a psych nurse to visit my mother-in-law while she was still on the Haldol. The psych nurse agreed to terminate the Haldol too. Here is the horrible part; the psych nurse ordered a different psychotropic drug on an as needed basis. What?? It took the family helping the POA another week to reverse that fiasco.
Why are doctors prescribing psychotropic drugs to seniors with dementia in the first place?
A POA needs to be vigilant. It may require educating themselves about medications that they no nothing about. Very few POA’s are doctors and nurses. If you are the parent of a doctor or nurse who will be your POA, then congratulations are in order for you.
What about a senior with neuropathy in his or her feet? Something as simple as buying quality shoes, so a senior has better balance is key. Will the POA do it?
What if your POA is an attorney or an absentee POA relative who rarely visits, how can they understand or advocate for your needs?
A POA needs to be willing to speak to the doctor on your behalf. Some possible POA’s are very direct (speak their mind) and others are indirect (prefer to fade into the background). Some folks are introverted and others are extroverted. Who are you asking to be your POA? Will they get the job done? This is not a position for sissies. Your POA needs to be hardcore if you are in dire need. Your POA may have to spend relentless hours pursuing a medication result that is beneficial for your needs.
What have you encountered? Who have you selected to be your POA? Do you feel good about your decision?
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I have found that Power of Attorney means different things in different States. I live 1300 miles from my mother that is now a resident of a nursing home. When I tried to access funds from her trust – the Bank informed me Nebraska does not allow POA to access trusts. So, we had to have her resign, as I was named as the 2nd trustee. The entire purpose of the Trust was to care for her, yet the Banking and legalities have cost a fortune. My advice, find out before you need Trust funds – how easy it will be to access and just what the POA allows in the resident State of your loved one!
Great tip Mark!
Keep in mind that potentially, your spouse may not be your best POA. My mom’s life had stared to come to and end with a bout of aggressive cancer. She shared with multiple of her children that she had lived a good long life with seven kids and didn’t really see a reason to extend her life for the short period of time the doctor’s promised.
On the other hand, my dad wanted my mom around just as long as he could. He continued to push for egressive treatment to the very end. They had less than stellar communication, so they each went their own way.
If my dad had POA, and mom was more incapacitated, my mom would have potentially sickening treatments that she really did not want.
Thanks for sharing Stephen. I wonder if others have been in the same situation of a POA wanting to extend the life of an ill person and the ill person wants to go. My mother-in-law said, “I want someone who is willing to the pull the plug on me.”
Guys, can we please bear in mind that this is not purely American based so power of attorney may mean different things depending on where you are based. Ta Wynne
What does power of attorney mean in your country?
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Lorie Eber
Diane, First you have to choose your agent very carefully. Once you have the wrong agent it is very hard to get relief. And then, as you point out, the agent needs to get more educated than many of the treating physicians who know very little about caring for the elderly. The easiest thing is to drug them to address behavioral problems. But, that’s not good in terms of quality of life.
Kathryn Watson
Excellent article! Choosing a POA and knowing what you should look for in a candidate is so important. You are right Diane, this is not a job for sissies!
Mark McKibbin
If a family member or close friend is not up to or able to be your POA, you can also consider a Professional Fiduciary. Here in California we not only are licensed by the state, background checked and bondable, we are also bound by the extensive Codes of Ethics of the Professional Fiduciary Bureau, the Center for Guardianship and the Professional Fiduciary Association of California.
Lorie Eber
Mark, Good point about professional fiduciaries. They are be a good option and most people do not even know they exist.
Mark McKibbin
Thanks Lorie … You are correct. The most common question people ask me is “What is a Fiduciary?” We serve those that do not have an available or willing support system.
Great conversation! How often does a fiduciary have eyes on their senior?
how about people/family who mess things up for the POA ?. i seen this happen. its not always the POA’s fault.
Absolutely true!