by Diane Masson | Nov 8, 2015
Yesterday, I had the pleasure of hearing Dr. Steven G. Potkin speak about a new Alzheimer’s study to prevent Alzheimer’s at Angel Stadium of Anaheim. Wow, I hope this study is successful.
Dr. Potkin said that I could share all the information with you because he is currently seeking senior candidates who are 65 to 85 years of age (with normal memory) for this clinical study on Alzheimer’s disease (AD).
He is investigating a new drug intervention that may reduce the impact of a protein known as “amyloid” or “beta amyloid” forming plaques in the brain. Scientists believe that accumulation of amyloid in the brain may play a key role in the eventual development of AD-related memory loss.
Dr. Potkin is conducting the research study at the University of California Irvine (UCI) Medical Center in Orange, California. It is called the Anti-Amyloid Treatment in Asymptomatic Alzheimer’s study (the “A4” study for short) for seniors who may be at risk for memory loss due to AD.
A senior participant and his or her study partner need to be willing to be part of a three-year study. The study partner (must have frequent contact with the senior participant) would describe changes in the senior participant’s health to the study staff on a weekly basis.
There will be a PET scan at the initial screening meeting and at the conclusion of the three-year study to determine whether the senior participant has evidence of an elevated amyloid build-up. Senior participants will also receive monthly study drug infusions.
For more detailed information and the total compensation for completing the study, please contact Andrea Weideman with Dr. Steven G. Potkin’s Reseach Team at: 714-456-5697
My mother-in-law has Alzheimer’s and I pray this research can prevent future seniors from getting AD in the first place. Good luck to Dr. Potkin and the whole research team at UCI.
During my time with Dr. Potkin, he commended me for writing the book, “Your Senior Housing Options,” and said it is a much needed resource for seniors.
Diane Masson advocated for her mom who had dementia for nine years and her mother-in-law currently lives in a memory care community. Diane writes a Tips2Seniors blog every week and published a book to take the guess work out selecting senior housing before, during or after a health care crisis, “Your Senior Housing Options.” She has worked in senior housing for 17 years and her first book, “Senior Housing Marketing – How to Increase Your Occupancy and Stay Full,” is helping senior housing professionals on a nationwide basis.
by Diane Masson | Nov 1, 2015
You know who they once were better than anyone! Be the best advocate you can be!
Here are some tough statements that family members can hear at an Alzheimer’s or dementia care conference for their loved one (who might be residing in assisted living, memory care or skilled nursing care):
- She can’t direct her own care…
- Is regularly disoriented…
- Needs full help with bathing and dressing…
- She can become frustrated…
- Can be resistant to care…
- Does not always remember to use her walker…
It can proceed into an in-depth conversation about the ability of your loved one’s communication:
- She is not very verbal…
- She has improved in the last four months from not speaking at all (because she was still coming off of the psychotropic medications) to being a little more verbal.
- The staff has to use phrases or questions that are seven words or less to create less confusion for her.
- The staffs’ goal is to elicit a “yes” or “no” response, so she can make choices.
Then a group discussion can proceed about who she can still recognize and if she can still call anyone by name (this is tough one):
- Does she recognize you?
- She thinks her daughter is her sister.
How much food is or is not consumed?
Our family has experienced witnessing continual weight loss of my mother-in-law for 10 months. She is eating 50% of her food, but can pop out of her chair and start wandering sporadically while dining. She walks almost continually. The staff have problem solved this by feeding her in the country kitchen instead of the dining room to increase her food intake.
What should you ask in a care conference? Don’t be intimidated; no one knows your loved one better than you. Be his or her advocate to the best of your ability.
- Find out exactly what medication they take and why. Sometimes they were given a medication like a psychotropic in the hospital and no one is paying attention to the fact it is not necessary anymore.
- How much exercise or movement do they experience? Staying mobile is important.
- Inquire about live entertainment. Your loved one may be refusing to go to live entertainment and you know they love music. The only reason they may be refusing is because they can’t HEAR the caregiver asking them to go. Maybe the caregiver needs to speak up or…
- Ask about music therapy. It can be very affective for dementia and Alzheimer’s. If they tried it once and it was refused, try again. Every day is a new day. Seniors with dementia (such as my mom) can be more receptive and oriented in the morning.
- How much food do they eat? Maybe they are not eating because they have lost teeth (this happened to my mom)? Food adjustments can be made.
Is there anyone else out there dealing with a parent who has dementia? It is not easy. What tips can you share?
Diane Masson advocated for her mom who had dementia for nine years and her mother-in-law currently lives in a memory care community. Diane writes a Tips2Seniors blog every week and published a book to take the guess work out selecting senior housing before, during or after a health care crisis, “Your Senior Housing Options.” She has worked in senior housing for 17 years and her first book, “Senior Housing Marketing – How to Increase Your Occupancy and Stay Full,” is helping senior housing professionals on a nationwide basis.
by Diane Masson | Oct 25, 2015
Residents and staff from Freedom Village in Lake Forest walking for Alzheimer’s!
If enough of us keep walking and raising funds for Alzheimer’s we will eventually find a cure for this detrimental disease that affects so many seniors including my mother-in-law.
Almost $110,000 was raised by 741 walkers at the Laguna Niguel Alzheimer’s Walk on October 24, 2015. It was my first time raising awareness for Alzheimer’s in California. I was part of team Freedom Village (a Continuing Care Retirement Community in Lake Forest) who came in seventh for fundraising.
My mom had dementia for nine years and died in April. I watched the disease rob her of the ability to communicate. Her last and final roommate in skilled nursing was a wonderful woman who is still battling Alzheimer’s. I rode the bus to and from the Alzheimer’s walk with her husband. He shared the struggle of trying to keep his wife independent as long as possible. He had alarms on the doors to wake him if she tried to wander off in the night. Eventually, those alarms where not enough to contain her at night. He had to find her a safer home.
This brilliant husband took his wife one day a week to Silverado memory care to participate in activities. After several months he increased it to two times a week. She was so comfortable there that she would walk in and immediately be engaged with a staff person and walk to an activity. Then the decision was finally made to make it a permanent move. This time the community recommended that he not return for one week, so that his wife could adjust. She did adapt. In her three years at the community, she never asked once to go home.
At the walk, I learned that Alzheimer’s affects more women than men. It was a beautiful experience to walk side-by-side with other people that have been touched by this mind-altering disease. People carried blue flowers if they had Alzheimer’s. I carried a purple flower because my mom died from dementia. Other colors of flowers that people carried signified being a caregiver or financial supporter of Alzheimer’s.
All the Freedom Village residents and staff had a blast. Imagine what we can do next year in group participation and fund raising. We will build on our momentum and team enthusiasm from our first annual walk for Alzheimer’s.
How have you raised awareness for Alzheimer’s? Let’s keep this conversation going on social media to find a cure soon.
#Walk2EndALZ #freedomvillagelakeforest #silverado
Diane Masson is a sought after author, blogger, speaker and regional marketing director. She is very passionate about advocating for seniors on a nationwide basis and educating them about their future choices. She just published a book to help seniors take the guess work out of selecting senior housing options or staying home. It is called, “Your Senior Housing Options.” Her other book has been popular with senior housing professionals on a nationwide basis. It is called, “Senior Housing Marketing – How to Increase Your Occupancy and Stay Full.” You can contact her through her website at tips2seniors.com.
by Diane Masson | Oct 18, 2015
Around 12.9% percent of seniors live in poverty in this nation. They can’t ever enjoy a nice retirement or assisted living community with services! It broke my heart to participate in a health fair at a senior center in Riverside, California a week ago. About a 1000 seniors attended.
Most seniors were looking for Section 8 or HUD Housing retirement options. What are these options? It’s renting an apartment based on a percentage of their income or a flat fee. It is simply an apartment building that houses seniors. The senior will most likely not have onsite services and support as they age and dementia begins.
Subsidized senior housing typically does not offer meals, entertainment, wellness classes, transportation to medical appointments or pay for a senior’s cable TV.
It’s disheartening to know that American seniors will be pushed aside to fend for themselves. Why is America trying to save the world and can’t take care of our own seniors? In many states, low-income seniors have no way to afford assisted living. Sure we have Medicaid and Medical when a senior becomes almost completely incapacitated and needs skilled nursing care.
What about that in-between step when a senior needs support either physically, mentally, nutritionally or is lost in dementia? What about that intermediate stage when it has become too difficult to grocery shop or cook for themselves. What about when a senior’s arthritic fingers can’t open a jar or button a blouse? Maybe they can rely on family, friends or neighbors? What if they need help at 7:00 AM or in the middle of the night? What if they don’t ask for help?
I spoke with seniors at the health fair who lived with their adult children. Other seniors had grandchildren depending on them for support. Finally, several seniors had adult daughters caring for them. I asked one frail couple, “What is your plan for your future health care?” They told me that their daughter will take care of them. I asked, “What happens when your care becomes more than your daughter can handle?” (I really wanted to ask if they were willing for their daughter to toilet them at some point.) They were sweetly oblivious to my inquiry and said that she would be able to handle it.
We have a crisis in this country. What can we do about it? Many seniors are living below the national poverty line. They can’t afford to bring in home care, nor can they afford senior housing. Meals-on-Wheels is a wonderful resource, but seniors have to be willing to ask for help.
What are your thoughts on this subject?
Diane Masson is a sought after author, blogger, speaker and regional marketing director. She is very passionate about advocating for seniors on a nationwide basis and educating them about their future choices. She just published a book to help seniors take the guess work out of selecting senior housing options or staying home. It is called, “Your Senior Housing Options.” Her other book has been popular with senior housing professionals on a nationwide basis. It is called, “Senior Housing Marketing – How to Increase Your Occupancy and Stay Full.” You can contact her through her website at tips2seniors.com.
by Diane Masson | Oct 12, 2015
Listen and learn important tips and strategies to help you understand and navigate senior housing options in this 30 minute interview with Diane Masson, Senior Housing Expert.
Yesterday, I had the pleasure of hearing Dr. Steven G. Potkin speak about a new Alzheimer’s study to prevent Alzheimer’s at Angel Stadium of Anaheim. Wow, I hope this study is successful.
